Before undergoing an autism or ADHD assessment as an adult, there are many types of support available to help you feel prepared, informed, and empowered. Here’s a breakdown of options you can explore while waiting for a diagnosis:
1. Pre-Assessment Counselling or Guidance
- Therapists and counsellors: Some specialise in autism and ADHD. They can help you understand the diagnostic process and what to expect, and provide emotional support.
- Support groups: Join online or in-person groups to share experiences and feel less alone during the waiting period.
2. Diagnostic Services and Referrals
- GP (General Practitioner): Your first step. GPs can provide information and refer you for assessments through the NHS or private providers.
- Psychologists and psychiatrists: These specialists can offer both assessments and pre-assessment consultations to guide you through the process.
3. Information and Resources
- Organisations like the National Autistic Society (NAS): Offer webinars, toolkits, and guidance tailored to adults awaiting diagnosis.
- Online communities and forums: Reddit, Facebook groups, and specialist forums allow you to connect with others in similar situations.
4. Self-Help and Coping Strategies
- Executive functioning coaching: Work with a coach to build daily routines and coping mechanisms that support ADHD or autism-related challenges.
- Mindfulness and stress reduction: Meditation, grounding exercises, and breathing techniques can help reduce anxiety and sensory overwhelm.
5. Educational and Workplace Support
- Workplace accommodations: Even without a formal diagnosis, the Equality Act 2010 allows you to request reasonable adjustments such as flexible hours or quiet workspaces.
- Student support: Universities and colleges often provide interim support through disability services, even before an official diagnosis is made.
6. Assessing Your Needs
- Self-assessment tools: Online tools like the Autism Spectrum Quotient (AQ) or Adult ADHD Self-Report Scale (ASRS) can give insight into your experiences. These are not diagnostic, but can help prepare for assessment discussions.
7. Support from Family and Friends
- Educate your support system: Help loved ones understand neurodiversity so they can support you better during the journey.
- Advocacy help: A trusted friend or family member can advocate on your behalf during appointments or when communicating with services.
8. Waiting List and Advocacy Services
- Local mental health or advocacy groups: Some charities and services provide help navigating long waiting lists and may offer interim support.
- Neurodivergent advocates: Trained advocates can help you understand your rights and options throughout the process, especially in public health systems.
Final Notes
The path to diagnosis can feel long and uncertain, but you don’t have to wait to get support. There are many ways to care for yourself and access guidance while you wait. Be kind to yourself, take steps at your own pace, and seek out the resources that feel most aligned with your needs.